Maggie's new website
Welcome to Maggie's new and improved family website. We launched this website in 2004 and continue to make changes and add information. The site is dedicated to our daugher Mairead Roisin "Maggie Rose" for all of the love and chaos, joy and anarchy she brings to our lives.
All about Maggie and our website
Maggie and her website have put us in touch with people all around the world! The site helps us share her joy and triumphs, as well as her trials and tribulations. When we first learned that Maggie has Angelman Syndrome, the only ray of hope we found online was Holly, the original Angelic Anarchist. We immediately chartered Local 2 of the International Union of Angelic Anarchists and Holly became our gang's spiritual and tactical leader. In the spirit of Holly's PA of having a website to share the love and anarchy of raising a child with Angelman Syndrome, we built this website as part of the worldwide conspiracy of angelic anarchy. If you are looking for information about AS, or just trying to keep up with Maggie's adventures, you have come to the right place.
- Maggie's powerpoints and other resources: See examples of materials we share with school to communicate with and about Maggie, including the Maggie-pedia, Maggie's powerpoint presentations, her school-to-home communication page, and more. Maggie's documents are posted both as PDFs as well as in their original format (ie: Microsoft Word or Microsoft PowerPoint) so you can edit them for your own use.
- Maggie's Video Blog: From 2004 to 2008, Maggie's blog readers followed the adventures of joy and chaos as Maggies laughed and bounced her way through life. Maggie's dad wrote the posts, but the inspiration was all Maggie. In 2009, Maggie fired her dad from blog authorship and is currently recruiting a video producer to update her celebrity look in keeping with new technology trends. Stay tuned for updates!
- New diagnosis support: Information for families with a recent diagnosis of Angelman Syndrome. When we first received the diagnosis of Angelman Syndrome in the Fall of 2004, we were devastated, but Maggie would not let us stay down. We also received a lot of support from other families. We welcome contact with newly diagnosed families and hope to share our experience of Maggie with you.
- Resources and news from the Angelman Community: Erin is very active on the AS listserve, sharing messages of support, information and ideas with families around the globe. Our website shares our ideas and experiences.